Thursday, May 27, 2010

Jesse's Kindergarten Graduation



Isn't it awesome to have a teacher who totally has your child figured out? She has him pegged to a T! Hilarious! (sorry about the sideways video...video is not my best area)

In case you have trouble hearing she gave him the "caramello candy bar award". She pointed out his swagger on the way to the podium, that he even walks mellow. LOL

Monday, April 19, 2010

Happy Traveler


Happy Traveler
Originally uploaded by MrsSuperSpy
I apologize for not updating sooner on our visit to CA. I'm kind of one of those people who have to let things mix around in my head and then settle down before I can go around talking about them.

Anyway, we flew in for a couple of hours and met with Dr. Levitin. For me it was kind of uneventful. I had talked to him many times and really he just told us the same thing. For Pete, though, it was a good trip. He was glad to meet him and hear for himself what would be happening. So, I am glad we went.

The conclusion is that she will need 2 surgeries and 2-3 laser treatments. Not really something that a parent wants to hear. However, it has to be done, and Dr. Levitin is the best one for the job. We are hoping that our insurance will cover all of the procedures...Dr. Levitin has started with the paperwork already. He assumes it will be a fight with them and so we have a hopeful date of early June for her first surgery.

Miss Samantha's Table


Miss Samantha's Table
Originally uploaded by MrsSuperSpy
I made this! Can you believe it!?!? Well, actually, I can. hehe I'm pretty handy if I do say so myself. However, I have NEVER tackled a project like this. Where I actually made something that IS something. Does that make any sense?

Monday, April 5, 2010

Sami is headed to Hollywood!

We've decided to go ahead and take our sweet baby to California to see the famed Dr. Levitin. I have been talking to him off and on via phone and email since last summer. He is an incredibly kind man, his daughter had a hemangioma similar to Sami's. He is also amazing at what he does. I have incredible faith in him...that he can help our little girl.

Of course, surgery is not what we had hoped for her. We were hoping with all the meds and the steroid treatment that we would be able to avoid surgery. However, her hemangioma is still making itself at home, with not much sign of leaving. This along with the fact that she has excessive scarring from the ulceration (when her hemangioma split open from the rapid growth), and the fact that her lip is droopy now because of how large/fast it grew, makes us realize that at some point she will need to have surgery. Even if the hemangioma were to completely go away.

So, on April 14th we will head to Hollywood! I'm trying to think positively. Of course, the defensive mother in me is pissed. Why should I have to put my baby through this? There is NOTHING wrong with her! She is perhaps the most sweet and friendly baby you will ever meet. But, you all know how it is. We can't go anywhere without comments, stares or points. And, my sweet baby is just too innocent right now to know what it all means. In fact, today while we were waiting in line at Costco (churro, mmm!) a little boy in front of us kept staring at her. After a few minutes she looked up at him and just waved! Bless her little, sweet heart! Soon enough, though, she will understand what people are doing/thinking when they look at her. Because, you see, people who don't know our baby don't see her as the beautiful little creature I do. In fact, they don't see her at all. They see her hemangioma. And, she is not a hemangioma, she is an incredible little girl, with many things to see and accomplish in this world. And, this is why we have decided to go forth and see Dr. Levitin. I can only pray that one day she will know and understand that we made this decision for her...not for us.

I have always said that having a baby with a hemangioma is a long, lonely, bumpy road. But, that it is one we were meant to travel. There must be some reason that we were given this path. Sometimes I think it's so that I can teach our other children that everyone is made differently. In fact, I'm sure it's ingrained right onto their little brains. The last time PJ told me about somebody who did something or other that he thought was odd I started to say it and he said it for me "that's just how he got made, right Mom" because, it's true, this is just how Sami got made. I also hope that our hemangioma has given me a bit more patience and tolerance. Of course, after the 50th time in a day I am asked "*gasp* What happened to her!?!?" I do want to kick somebody in the head. But, I usually don't. And, sometimes I want to scream NOTHING! But, I don't do that either. I usually just explain to them that it is a birthmark. But, some times I just smile and pretend I didn't hear them. :)

On our long road of being a hemangioma family we have also made awesome heman friends. I swear, heman babies must just be the happiest little things ever! Sami even received several Christmas cards from her little friends! It's just so nice to have them to talk to when you're having a bad day...somebody who truly understands how it feels. In fact, today I was stunned speechless. I had posted on a birthmark website forum about our planned travel to CA to see Dr. L. One of the replies was from a heman family who lives down the street from his office and they offered to pick us up at the airport and drive us to our appt! They even offered to let us use a carseat and a stroller! Isn't that amazing! I am still in shock! What a wonderful thing for a complete stranger to do! Turns out they have an appt with him that same morning. We have already gotten a rental car, but I'm hoping we will be able to meet this awesome family when we are there!

Our appointment is on the 14th, so I will be sure to update how it went.

Friday, February 26, 2010

Yes, we are still alive...


...but just barely.

We have all been in a whirlwind around here. Life in general and all the added things that come with having 4 little ones have given us plenty to do. We decided to seperate the boys, and give them each their own room. This meant moving Tay downstairs and then moving PJ into her old room. This was not an easy task. However, Tay is just such an awesome kid that she really did most of the work on her room switch herself. We are almost done, just have to paint and fix up Jesse's room a bit. He wants a Phoenix Suns room, so I also need to get him a new comforter and curtains.

This pic above is my sweet baby on her 1 year birthday! She spent the day puking, but by evening she had perked up and we got a few cute shots.

The boys are starting baseball this week. Tonight they both have practice. Thank goodness for Taylor! She is going to stay with PJ at his so that I can drive Jesse down the road and stay with him.

Sami has also started making a lot of new friends. She goes to baby classes at the library 1-3 times a week. It was just recently that most of her new friends moms found out that she was my fourth child. I guess with all the big kids in school people must assume that she is my only child. We have such fun during the day on our outings! I'm loving having all this time with her. But, when her siblings are home she is soooo happy to see them! She just loves them so much. And, they adore her.

Monday, November 30, 2009

You are my sunshine...


You are my sunshine...
Originally uploaded by MrsSuperSpy
My sweet girl smiling in the sunshine...

She brings a smile to the face of everyone she meets.

Has never met a stranger.

Does not discriminate when passing out the smiles, waves and "hi's".

Be it an elderly lady or a tattooed biker dude.

She loves them all.

And we all love her...

Friday, November 20, 2009

Jesse is October's Student of the Month!


...and I have the bumper sticker to prove it!

It was a nice ceremony and his teacher gave a little speech. She said how she had been waiting for Daddy to come home to name Jesse S.O.M. Which was a relief to him because the poor boy was getting so discouraged that he hadn't been picked...in all of what? 2 prior months? LOL! Anyway, she said a lot of nice things about him and then she told everyone about how much Jesse liked Abraham Lincoln. She said "Jesse knows a lot about Abraham Lincoln. Jesse, why don't you share something with all of us?" Swoosh....and she put the microphone up to my 5 year old's face. Without missing a beat he replied..."Abraham Lincoln was our 16th President". It was amazing! If my teacher had done that to me while in Kinder I would have hid behind my Mom and cried. I am so thankful that he is so confident and secure. What a wonderful way to be able to go through school!

We are so proud of our little man. He is smart and happy and just a great little person. And, I think he's pretty cute, too, but I'm just his Mom.

We Love You, Jesse!

Wednesday, November 11, 2009

Happy Veterans Day!





My father-in-law, Nacho, joined Sam and I at the boys school yesterday! Jesse had asked him to come speak to his class about being a veteran and Nacho was kind enough to accept. He stopped at our house and picked up Sam and I on his way. We headed to PJ's class first since I had an appointment to teach Junior Achievement. We were a few minutes early so his teacher asked Nacho to speak to her class for a bit while they had their snack. He had brought along a few pictures, so she showed them to the class while he told them about what he had done while in the service. PJ's class was very impressed with all of the places Nacho had lived while in the military. Ms. C pulled down the world map and he spent a couple of minutes pointing at places around the world where he had been. By about the 5th or 6th location you could hear the kids starting to say "whoa!". haha They were very impressed. They asked a few questions and then Nacho sat with Sami while I did the JA lesson.

After 3rd grade we headed to lunch with the kindergarteners! We even sat at the little table with them in the cafeteria. The boys eat at about the same time, so when PJ came in he came and sat with us, too. I thought it was great! Loud and busy, but super fun! While we were eating the kids really wanted to talk to us. They kept telling us little bits of information; they had been talking about veterans and looking at some of the things Jesse had brought in before lunch. The funniest thing, though, was when I heard a little girls voice say "Mr. Nacho? Are you going to go to the playground with us?"

After the kids had a few minutes to run around on the playground they came in and got ready to listen to "Mr. Nacho". Jesse took a bag full of things that his grandfather had given him to school with him that day. They had already seen and talked about all of that, so while we were there Jesse got to stand up front and hold up the pictures Nacho had brought. They were pictures of him in the tower where he was an air traffic controller. The little kids were a bit confused with all the buttons. But mostly, they wanted to know about guns. Guns and uniforms. haha But, mostly guns. Nacho tried to explain to them that the military was formed so that people wouldn't have to fight and use guns, but I'm not sure it went through their little heads. Shortly after he said that one little boy raised his hand and announced that his Dad was a Ninja...

Wednesday, November 4, 2009

11 months!


Our sweet Samantha is 11 months old. She is doing so great! She is just a wonderful little person. She loves people. Doesn't know a stranger. And is easily the happiest child I have ever met.

She has discovered that she loves tomato sauce. Lasagna, pizza, ravioli...loves them all. Can't get enough of them. But, she will really eat just about anything.

We are still waiting on her to start moving. She reaches and somehow scoots a few feet over a matter of time. But, no crawling. She just doesn't seem to have anywhere she wants to go. She has a constant stream of live entertainment that comes to her! Why go anywhere when everyone comes to you? :)

Most exciting this month was the fact that Daddy came home! Pete had a mandatory training for work and was gone for 9 long weeks. When he came back it was apparent that Sami did not recognize him. But, it didn't really matter. He carried her through the airport and she made no objection. They spent the remainder of the week getting reacquainted and now you can just see her light up when Daddy is near. So, I guess I am back to being second in line around here!

We are now busy getting ready for her big birthday celebration. I'm working on her invites and her special cupcake dress. I just can't wait!

I'm sure there are many things I forgot to mention, but Daddy's homecoming really was the highlight of our month. And, I seem to have forgotten most everything else because of that.

Monday, November 2, 2009

Halloween 2009


IMG_3702
Originally uploaded by MrsSuperSpy
Miss Samantha in her Halloween outfit at brother's school.

(If you click the picture it will take you to the other Halloween pictures!)